Our Approach
Community-centered engagement strategies designed to strengthen trust between research sponsors and the sickle cell community.
Advancing Research Through Trust and Integrity
At MTS Research Solutions, we believe advancing sickle cell disease research requires more than scientific innovation—it requires trust.
For communities historically impacted by inequities in healthcare and research, engagement must be thoughtful, respectful, and rooted in genuine partnership.
Our work focuses on helping research sponsors build meaningful relationships with the sickle cell community while ensuring research communications and outreach strategies reflect both scientific integrity and community dignity.
The MTS Community Integrity Framework™
Research materials may be compliant.
But compliance alone does not guarantee trust.
The MTS Community Integrity Framework™ guides how we evaluate research engagement strategies, communications, and outreach initiatives.
This framework ensures that research engagement is not only scientifically accurate, but also culturally informed, ethically grounded, and respectful of the lived experiences of individuals and families impacted by sickle cell disease.
Every engagement is evaluated through our proprietary framework, which assesses the following six key dimensions to ensure research communications respect both science and community:
Tone, Intent & Language Precision
Informative and clear explanations—not promotional.
Historical & Racial Context
Acknowledges lived experience without politicizing.
Representation & Visual Integrity
Avoids exploitation of Black pain. Centers dignity.
Health Literacy Balance
Accessible without being reductive.
Ethical Alignment
Appropriate even if study results are neutral.
A Community-Centered Engagement Process
Our work follows a relationship-driven process designed to ensure research engagement reflects the priorities and perspectives of the sickle cell community.
STEP 1
Listen
We begin by engaging with individuals living with sickle cell disease, caregivers, and community leaders to understand their perspectives, concerns, and priorities.
STEP 2
Consult
We work closely with research sponsors to develop engagement strategies that reflect community insights while maintaining scientific and regulatory standards.
STEP 3
Engage
Through thoughtful outreach and trusted partnerships, we help sponsors build authentic relationships with the sickle cell community.
STEP 4
Support
We continue to support sponsors throughout the engagement process, helping refine strategies based on community feedback and evolving research needs.
Strengthening the Connection Between Research and Community
MTS Research Solutions works with pharmaceutical companies, biotechnology firms, and research organizations seeking to strengthen trust and engagement within the sickle cell community.
Together, we can ensure that research advances are supported by meaningful partnerships with the communities they are intended to serve.
Trusted by Leaders Advancing Sickle Cell Research
